"Just the Facts"-- Feeling pretty good, with the exception of this head to toe rash, that is so itchy and burning, unable to walk on feet.
B had a home day today. Most would be bored, but after being in the hospital or going to infusion almost every day since mid January, a full home day feels pretty good. Still low on energy, but that will come. Our main focus is keeping the prescription cream on the affected area of this rash, which is everywhere! The feet right now are taking the most beating. B is unable to walk without feeling intense pain. So when I got home we put ice packs on his feet and wrapped them up. It was pretty funny looking, but did a good job in easing the pain. I am nicknaming him Ice Walker! What else are you going to do? We go to infusion tomorrow and get an update from the big doctor, so that should be interesting. We are hoping the numbers hold.
This week has been a blessed week despite the issues B is dealing with. We have been blessed with food all week. Sweet little angles had dropped by special dishes made with love. This is a help to me as I don't have to cook for myself and the girls, only B. He is on a special diet and cannot eat anything from outside the home. We have that worked out fairly well by now. It's a good thing his taste buds aren't working too good! The funny thing about his diet is he can only eat really well processed foods, which is the exact opposite from his all natural, organic style of eating. He is so skinny, that I give him drumstick ice creams anytime he wants. Guess at least that is one perk. Anyway the meals were a great blessing and a wonderful gift card surprise was too! Bless each of you for your thoughts and prayers towards B and our family. We are humbled by the love and support.
Until next time,
Hopeful Believer.
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