Mar 12, day +43 The good and the bad

"Just the Facts"--  Infusion center today, 6hours, 1 bag of platelets, still have the mighty rash, and weigh only 140 pounds.

Well, it would seem that I have fallen into a new rhythm for this blog and I don't think I am going to fight it.  So you can expect to get an update about every other day or so.  Of course if there is something significant, that will call for an exception.  My sister says I should note this so that any absence of the blog won't cause any undo worry..I just figure you would realize that I am too tired and went to bed instead!  B was at infusion 4 times this week and a big doctor visit as well.  The big doctor saw his rash and went to town with a new battery of medicines.  This new cocktail make him even further immuno-suppressed,  so now we have to be extra, extra careful with just about everything he is exposed to.  That is the last thing we want is more drugs, but guess you have to just go with that for now.  B's rash is still pretty bad, but I can see improvement where his own skin is starting to show in places rather than the rash.  It is still pretty painful to walk, so that has been cut back to just walking in the house to needed areas.  It is like they are on fire, and now it has appeared on his hands.  The best consolation for dealing with the severity of this rash, is knowing that some GVH is good to have and in the long run helps the grafting process.

While at the doctors, we got the results back from the biopsy, and it revealed that all the blood in B's system is now the donors.  So his blood is now fully O neg.  Those wonderful donated super cells had and still do have a big job to do.  So far they are doing everything they should be doing and that is amazing.  Exactly what we had hoped for.  The other great news is that his blood numbers continue to work on their own and hit a level of 12 and held (RBC).  Again, this is why we did this treatment.  It has been a little over a week since B has had any blood infusion and he is at a 12!  This to us is really news to celebrate, even if our feet are on fire!  So we will continue to plod along trying to eat more to increase pounds rather than lose them and try to continue to walk to build strength and stamina.  We thank you all for your continued prayers.  It seems that this has been a long process, but truly we have accomplished quite a bit in the last 8 weeks.
Until next time,
Hopeful Believer