"Just the Facts"- 2 year benchmark from transplant: Blood status: great! Immune Status: still suppressed. Side Effect status: GVH still hanging around and undergoing treatment. Prognosis: Good!!!
I can't believe we are at the 2 year benchmark from Treatment for B. This is a significant milestone in his journey. They say that the status you are in at the 2 year marker determine what the prognosis will be going forward. Meaning that if you are still having significant problems at the 2 year marked, things may not go so well moving into the future, but if you are faring well at this point you will most likely have a better chance for longevity. Of course we are always hopeful of this.
Sometimes it seems like it was just yesterday that I was anticipating the arrival of "what" I wasn't sure but I was surprised to find that it was just 2 of the tiniest bags of blood I have ever seen, but there they were in a small blue playschool cooler, that live saving blood for my dear husband, hanging on by tubes of blood being infused into him. These 2 bags were generously donated by some gracious women who cared about humanity with an extra measure and we were blessed by it. I can replay that day so vividly in my mind, and then it is hard to believe that today, it was 2 years ago. I think back with amazement and great joy and peace in my heart for all we have been through and the hope I have to go forward.
These 2 years have not been without obstacles and set back, but I have found that if you look forward with hope you will find it, even is small insignificant ways. We still wake up not knowing what the day will bring, as just a few weeks back, B was hospitalized with a virus. It was something that you or I could have fought, but not him due to his being immuno-suppressed still. We still have our guards up on this front and try to be careful that he doesn't get exposed to some wild thing. But too, we try to live as normal as we can to help impress that he is getting better, even if it is in small measures.
I don't believe it was a mistake that my devotional today opened to the subject of Joy. Joy in knowing that you are loved by your Creator. You could have everything taken from you and what should still remain is joy in knowing that He loves you. His presence is always there, even when all else has failed. This joy one should be easy to hang on to, but in fact, it slips away from us due to the circumstances that surround our lives that cause joy to fade and even block it from our being. But today I know I have His joy and was reflecting on how much we have be imprinted with His joy. There is no magic here, it comes from knowing Him and His love for us, and the prayers of so many people on our behalf. We will continue to move forward in our journey of recovery and keep His joy with us, as we reflect on how much He loves us. Thank you all for walking on this journey with us and keeping us on your prayer list. It has meant so much to us.
Until next time,
Hopeful Believer
