"Just the Facts"-- Home from the hospital, new catheter in arm. Feeling better each day. Getting new strength in legs!
B came home from the hospital this past Monday evening. I hesitated to write, as the last visit he turned right around and ended back in the hospital, so I was holding my breath a bit. That first night back again was a bit touch and go. But let me back up a bit. The replacement catheter that they put in 2 weeks ago now, was taken out this past Friday. The doctors from Infectious Diseases confirmed that B had a bug from infection in his catheter. So they were pumping him full of anti-biotic and watching him over the weekend. They were running blood cultures to test for the infection. On Monday the put in a new catheter in his left arm, boy that was another ordeal. This event is bitter sweet for him. He loves not having the chest catheter, however he cannot put pressure on this left arm or the catheter with pop right out. So much for the bridges that he does all day long to build strength. Monday night was tough as there was some bleeding still from the new catheter and that always causes some stress, as he is still platelet dependant. His skin is so fragile that they tore some when taking off the tape, so that just added complication to an already compromised area. His body seems to be healing a bit each day. We are still watching for the GVH rash, as it likes to rear it's ugly head once in a while. As the steroids get reduced bit by bit that allows for the rash to get aggressive. The new strength in his legs is exciting and is a noticeable progress. His mind still needs to get clearer, but day by day we inch toward being completely healthy.
The last 2 weeks have essentially been a blur, with 2 ER visits, 2 hospital admittance and doctors and all the wild health issues that got us there. All that said it was nice to get B home and of course he was elated to be back home again. It was our daughters birthday today and we celebrated her. She has been such a wonderful help to me in all this. Too much really for someone so young, but she has done a phenomenal job and really truly taken great care of her daddy. We shared a short picnic at the bay to help celebrate. This was typical of what we would have done pre-disease. So it was a taste of our old life and provided hope for the future, that B will be well again and things although won't be the same, at least they will be much better than now. We look forward to the future and to what the Lord has for us. "Where there is no vision, the people perish", wisdom from above and very practical for today's living. We are blessed to have a tight, loving family that supports each other, and the vision and hope for the future. Happy Birthday girl!
Until next time,
Hopeful Believer.
