"Just the Facts"-- A week of measuring tests and shots, got blood and platelets, now able to eat hot food from restaurant, but not at the restaurant.
Today was a happy day for B. He asked the big doctor the question, "when do you think I can eat food from a restaurant?" The answer was now! yay! So of course I got marching orders as to what to get, but where he wanted to go was too far to keep the food hot, so we ended up with a burger from In N Out. He could not have any lettuce or tomato, but still really good. It was a celebration as the blood level we have been testing was the lowest before dinner reading we have had since we have been testing. I think maybe getting 2 bags of blood helped that. He has been biking to help keep the blood level at a good measure, and did I say that B tends to be a bit competitive? Well, he has been biking for 4 to 8 sessions of 12 minutes/2 miles each time. Low speed and easy, but when he realized this would help both the blood and everything else, he was on it. Now don't think he is ready to rock n roll, he barely makes it to the couch after a cycle session and says it is the hardest thing he has done. But he continues to push himself and reach for a fully healed body. We still have a ways to go, but today was a glimpse of the future. We are all so happy to see this day.
B is still on a truck load of steroids and this is keeping his system in an immuno-suppressed state, but his body is working hard to keep the protective blood levels working. Once all the GVH/rash gets out of town, he will be able to get off those meds. Again a day we are anticipating. These meds effect how he feels and how capable he is to do things. So we want those steroids gone. It has been a long tunnel, but I think we can see a glimmer of light at the end of the tunnel. Oh, did you see some of the hair? Really going slow, but it is there. He is jazzed about that too! Right now we love the simple things in life! Take time to smell the roses, enjoy the blue sky, share a great smile, these are all worthy things to allow your soul to breath. And breath is a gift, given each and every day, by our loving God.
Until next time,
Hopeful Believer.
