"Just the Facts"-- Blood is up, Platelets are up, chem levels doing good, reducing steroids, and Released to Drive!!!
We have been to either the doctors or infusion combined in the past year over 150 times, and today was the second best news ever. After 8 months, B was released to drive. This is a major change for us and especially to B. Having to depend on 3 very busy females was beginning to ware thin for him. To always have someone on call to take B to and from the hospital 2, 3 or every day during the week has been quite a project. Today's events was most certainly an answer to prayer. We test drove last week, but will do a little more, then this week, B will drive himself to infusion for this first time since the transplant. The other good news came on his lab report. His blood went up a whole point, without getting blood. The last time I mentioned getting blood, we were trying to go for 3 full weeks, well, we made it 1 day shy of 4 weeks! That a was a huge milestone in this journey. Now we are enjoying seeing the numbers just not stay level, but actually go up. B's platelets went from 51 to 75! 75 being the highest reading yet since the transplant. We still have a ways to go to be in the normal range, but all this is really, really great news, and we are really pleased.
We are having to catch ourselves, as the natural desire is to move forward at full blast getting things back to normal. But it could take one simple mistake to take us back, so we are trying to remind ourselves to go slow, take it easy, keep a steady pace so that we don't digress. We have so much to be thankful for and we need to not take any good steps for granted. Nor all the support and kindness we have received, which has humbled us and overwhelmed us all at the same time. We are contemplating saying goodbye to the lounge, and getting B, his office back. This move will also be very significant and speaks to just one more phase of life trying to get back to normal. For B, normal will be, being able to surf, swim, eat, work and play and share time with family and friends, without concern for energy, bacteria, shortness of breath or having to get blood infused. Right now this seems like a lot to ask for, but we feel certain, these things are in our near future. Answered prayer, we love it! Thanks and Bless you.
Until next time,
Hopeful Believer.
