"Just the Facts"-- Blood levels continue to hold. GVH rash is hanging on and being stubborn, using high levels of chemo meds to abate the rash. Tired, still immno -suppressed, and still have a pic line.
Wow, January has always been a blur of a month for us. We celebrate several birthdays, an anniversary and being in accounting lots of year end reporting to complete. Not to mention planning for an upcoming wedding in the near future. Even though the month has blown by, we did not miss the significance of January. We quietly celebrated 1 year since B's Bone Marrow Transplant. I reflected on all that went on during this past year, while B was wishing he was further along and is pressing to move forward.
I have reflected back over the year because I am thankful for the fact that B was here to celebrate both his new and real birthday, our anniversay, other family birthdays. I am also thankful for the fact that we have all survived by the love, grace and support of so many. It's been a wild ride and I don't want to forget, that strength was provided when needed, food was provided and continues to show up, financial support has been provided in many ways. Care and concern has shone up over the year in so many ways and in a constant form. The abundant prayer that has been presented to our King is beyond counting and it continues today. I choose to not forget where we have come from and how far we have come. I want to stay in that state of thankfulness and reliance on what the Lord will do in our lives.
B, on the other had, has trouble with recall of the past and doesn't want to entertain thoughts of what he has been through. He want to focus on going forward and to recapture his health, re-establish his work capabilities and enjoy this new lease on his life. I can understand this about him, as he has been through a tremendous amount of issues. Even though he is struggling with his third round of GVH rash, and suffers from the burning of his skin from the inside out, he is focused on getting back to work. He has been writing (stenography) for the last 3 months for periods of time each day. This builds speed and endurance all of which is required for tasks on the job. The past week was one to mark on the calendar as first, he visited his office and said hi to all the folks there for the first time in a year. Then he sat in on a depo as a backup and ended up staying the entire day. Tired but confident he made it home and rested through the weekend. It is very possible that this new week he could take a job for the first time in over a year!!!! All this while he is on the highest level yet of chemo for the rash. He can't take steriods any more. (thank goodness). So we will continue this course of medicine and see what the doctors determine as they watch him carefully. What he had was so rare that they really don't know exactly what to expect and are cataloging what the recovery process is so that they can record this in a medical journal. All we know is his blood is holding and we are so very happy about that. Each new day brings hope and excitment for what the next step will be. If you are lead to pray for us, please pray that the rash would begin to retire and we could come off the meds slowly this time. We thank each of you for your care and concern for the adventure we have been on. It has been a wild one and we are very thankful we didn't have to go it alone. Bless you.
Until next time,
Hopeful Believer.
