Well, sorry it has been a while since I last posted. November seemed to be especially busy. How did I do it before? Funny how we get accustom to our usual circumstances quickly. I had to go pick up some meds from the pharmacy after work one night this week, and I was reflecting that hey, I did this every night for a month last year, but instead of a quick 10 minute trip to the med counter, I was in the hospital until 9 or 10 pm and then went home for the day. I pondered how I could have done all that for so long and still function....then I realized, it was all the amazing prayer that was going up, on our behalf during that time. I have to say I was very tired after my quick trip to the pharmacy. So, if you are wondering.....Prayer works! And it works in more ways than you will ever know or realize. So once again, if you are one of those amazing people who have supported our family with prayer even once, I thank you from the bottom of my heart.
We have come a very long way.....we are at day +306, sometimes it seems like just yesterday and other times, it was another era ago. Time is so funny that way. I think time may be one of our biggest challenges in life. We can't slow it down or hurry it up. We try to conquer it, but time won't let us do that. The lesson in time is patience. Hard to learn and fabulous if you gain it. I hope you all get time enough to gain patience!
A word from B:
Dear Readers, Thanks again for all your prayers and support. My labs have
been getting better and better. I am now at a personal record blood level of
12.6. Amazing!
While my labs are improving, I've been tapering off from immuno-suppressant
medication, making me feel much more normal. In the process of tapering off these meds,
two weeks ago my body started fighting the donor again, and symptoms in the form of the serious GVH
rash returned. I was immediately prescribed more immuno-suppressants, back as high as I
originally was taking. I was scheduled to be off all suppressants by Christmas. This
is now looking like a two to three month delay. The Doctors say this is fairly normal, but I am finding it very
disappointing. I was counting the days, and now two to three months seems like
a lifetime. I need to get back to work, but can't now. Please pray that my rash goes away for good, and please pray for me to be
patient. It's getting more and more difficult each day to be patient.Thanks again,
Until next time,
Hopeful Believer and B
