Oct. 25, Day +269 Beachin it!

"Just the Facts"--  Weekly infusion appointments for testing, Blood levels continue to climb.  Haven't needed any additional support meds, except for protein.  Sleeping a lot.

We continue to be thrilled for each weeks infusion appointment and see the new "higher" blood level measurement.  It never gets old to get this good news!  That is the thing about good news, you never tire of it, it is always welcome and it gives you a boost.   So, why not go and seek out some good news!  We checked with the doctor to see if we could begin one of our favorite things to do; beach walking.  B got the go ahead, as long as he protected his skin from the sand.  So adorned with socks and shoes and a teenager, we took to the beach, walking on the sand.  Yay!  We have seen some mighty nice sunsets too! 

From B:

Thank you all for your prayers. Just got back from my weekly infusion, and my blood level climbed to 11.3. This is very exciting. Don't stop praying. The higher the better.

I've been taken off of more immuno-suppressants and hope to come off more at this Wednesday's doctor appointment. I'm dying to get the catheter removed from my arm to feel normal again.

Without working or being able to do my normal outdoor activities -- surfing, swimming or biking -- I'm very challenged with long days. It's very difficult not to be bored. Never thought I would experience this problem, but it's becoming a big challenge for me. It's given me super insight to what many people must be going through, be it an injury, illness, or old age. I see people who I think may be lonely and bored, and I start praying for them, wondering if they're emotionally going through what I am going through. It seems people who love reading all day never have this problem. I can only read for an hour or two at the most, do a couple of chores, play guitar for half an hour, nap a bit, and then I'm challenged on filling the day.   Thanks again for your prayers and support.

We all are really blessed by all your continued support and interest.  This has been quite a journey and so far has been on a good track.  But we don't take this for granted at all.  B just recently sat next to a women that was very distressed as her BMT treatment did not take.  This is something no one wants to hear as they sit at infusion and wait for their own results.  The prayer support has carried us through some very intense difficult times and yet we seem to have floated over the challenges. :)
Bless each and every one of you.
Until next time,

Hopeful Believer.