"Just the Facts"-- Surprisingly did not need blood or platelets today! That was great news, feeling good, but have the slows due to meds.
It is always very exciting when you go to infusion expecting to be there for hours getting your needed blood infusion and then to find out, yea! you don't need them today, as your levels have held or better yet, improved. This is also the report you would expect at post 100 days, however we have come to learn that in this journey, there is not an established path and that B is forging his own unique path each and every day. Because of this, it is even more exciting to find out that his levels are holding and he didn't need blood. He seems to improve just a hair each day, no pun intended, but that seems to be growing too! We do still have set backs, as today he weighed in at 139 so he has lost 8 pounds. This is all due to his glucose shooting up and he does not want to start insulin treatments, so we have shut down all the sugar, which was arbitrarily adding pounds. I didn't know that each day there were root beer floats being consumed. The daughter caregiver and her dad were in cahoots. So we are beating the glucose back down and working on real calories to build muscle and strength. The latest meds are giving him a challenge, it makes him foggy in the head and weak and fatigued. He had a recurrence of the rash, but not nearly as aggressive as before. All in all the real test we watch for is the blood production and that shows signs of working, and for that we are encouraged and feel blessed.
This journey has been going on for 5 months now and even though we think we are through the worst of it, we still have a ways to go. B still cannot drive, or work, or eat like the rest of us. He is still immuno suppressed and cannot be around people. Our family still has to be careful about being around lots of people and anyone sick. Our youngest daughter graduates from high school this June and it is my prayer that B will be healthy enough to attend this milestone in her life. She has experienced most of her senior year without her dad being involved and that has been hard on us all. But I know the Lord has equipped her with strength and character to deal with this difficult phase of her life. He does not promise us all a rose garden, but does promise to be with us during the desert patches of our lives. I have felt His presence and have come to rely on Him during this difficult phase in our life. I recently saw some friends and just the wonderful hugs and well wishes and blessings to pass on to B were wonderful and so uplifting. I thank all of you for your kind and generous support. Truly you each have walked with us on this journey and we so appreciate it.
Until next time,
Hopeful Believer.
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