"Just the Facts"--Able to get right up and not have to think about each movement. Eating well, maintaining weight and so far so good with no bad side effects, but feeling a bit weak today.
I said it before, we are waiting and holding our breath a bit to see if B will continue to improve and not get any bad side effects. It looks as thought his GVH rash is gaining some momentum. It has been slow to present but it is definitely lurking. This is curious as the pill that he takes to combat this is not showing up on his lab report. His dose was increased over the past week from 8 pills a day to 14 and still not showing up on the labs. We suggested that the refill was a different brand and we were told that that was not the issue. At the latest Doctors appointment, this subject became a hot topic and now has the big doctors attention. So we are hoping something is corrected on this soon, as we are watching the slow progression of the rash, and B is just coming to the end of the peeling feet, so we would really like to not have to go through that again.
On another lab report they did last week, but just got the results back, it was confirmed that B now has 100% of his donors blood. There isn't any left of his A neg blood cells. That was a great result and one we are rejoicing about. You might have noticed we are at day +77, we have come a long way and have been through a lot, yet we still have a ways to go. B weighed in at 142.5 today and even though this is a great improvement, he needs to get back to 170 to be himself again. He is still very skinny and the muscles all need to be rebuilt. Strength and endurance are going to be next on the training program after we get a bit more weight on. I have to say it has been nice to see some spunk in the guy these last 2 days! I am so thankful to all of you that are following, thinking of us and keeping us in your prayers. It has meant so much.
Until next time,
Hopeful Believer.
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