Apr 30, day +91 freedom bound second time around

"Just the facts"-- blood levels are improving again,
Chem levels are improving as well. Last day for IV meds! Hair growth is slow going.

It's been 5 days since I last updated B's activity. We have had a lot go on. First, I'm not sure I mentioned last post that B had a crown pop off, well we got that put back on. Putting it back was easier than all the prep. B had to have extra platelets, a note from the doctor to the dentist and take a large dose of an additional antibiotic. The crown was the simple part, but it could not have waited, as B's dry mouth has turned into full blown GVH of the mouth. Ugh. This is very similar to the body rash but in the mouth, in a wet environment, you can just imagine. We are back to bland soft food for a time until we can get this to back off. This development has once again added a new medicine to his routine. This one is for the mouth, a special medicated formula for the mouth used like a mouthwash. We also just found out that he had GVH of the liver! This is in part, why we have been at infusion every day. Those levels are finally getting to normal and we have been given a release from coming here every day. Actually we get tomorrow off for the first time in over 2 months! We are very excited about this.

We keep a close watch on the hair growth, but its like watching grass grow. I should be taking sequence photos of the growth, but that is just to complicated for me right now. In the mean time B has grown a mustache and hair just under the lip. He is so excited about this hair growth. He says that he is not shaving this off till all his hair comes in, it could be a while. He can take on several new looks, non of which any of his friends recognize. Several times he will be walking, say hi to someone he knows and they say hi and walk on not recognizing him. Oh well, just as well because the delay in the walk or the extra conversation will take any extra energy he has. B weighs 147 lbs as of today, so the ice cream is doing it's work! If only I could be on that diet.