"Just the Facts"-- 2 Bags of blood and 1 bag of platelets, a new belt and feeling good!
B knew that his levels were slipping a bit towards the end of the week, and the infusion staff was thinking ahead and prepping for a blood and platelet infusion for Friday. So all this was infused on Friday along with an anti fungal medicine, which he has been getting every day for the last several weeks via infusion. This was initial given in place of the bad medicine and also helped to correct the yellow eye syndrome. Those levels are almost back to normal after 3 weeks. We are careful to watch for any symptoms after a medicine change as that is usually when we see something present. B was a bit discouraged yesterday when he was getting infused because he realized that all the blood levels were lower, but really all the steroids have a big part in this and that is contributing to his needed more. Today he was fueled and feeling much better. Eating helps and feeling good helps too. When he feels good he is able to think and actually do more during the day, which isn't a lot but still better than just sitting in his lounge.
While feeling so good today, B and daughter went on a field trip to get a new belt. They found just what B wanted and he was so happy to have a belt that fit. Now he can walk hands free, because he doesn't have to hold on to his pants to keep them up anymore, with a good fitting belt. It's the simple things that bring such joy. That is a life lesson we all keep learning over and over again. So keep you eyes and heart open for the little simple things that bring joy, and take the time to enjoy them.
Until next time,
Hopeful Believer.
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