Mar 25, Day +55 Wild week

"Just the Facts"--  Feeling slightly better, still having stomach problems, but able to eat a bit more, and able to do some walking.

Yesterday was a fairly decent day.  B felt pretty good, was able to walk, talk and eat a bit.  He is still having some stomach issues even with the new stomach meds.  We were at the doctors for a visit yesterday.  Seems that the stomach issue is considered GVH of the gut.  I had this feeling in the back of my mind but didn't want to verbalize this.  So far he has have the skin GVH and now the Gut GVH.  Hope that is all.  You see there are 3 distinct kinds of GVH, 1 is called acute and presents in the first 100 days.  Then there is chronic and presents after the first 100 days and can go on for 2-5 years.  The final type is severe GVH and most don't make it with that one.  The acute GVH can be eliminated in the first 100 days as well, so we are hopeful.  We were able to drop 1 pill from the visit.  But B only weighed 132 lbs.  So the  next tasks is to get his weight back up.

Tomorrow we go to infusion and will get some blood.  This will be the first blood infusion in about 3 weeks.  To us this is amazing!  B has not gone that long without blood infusion since we first learned that B had this disease.  So this just goes to show how well the transplant is working.  So I am sure you are wondering, why does he need any blood.  He continues to get blood draws regularly and the production is not fully developed yet to be able to keep up with all the blood being drawn from his body.  So a little infusion is OK.  Now if we could just get past all the peeling, life would be doing much better.  In review we are feeling pretty fortunate, as at the beginning of the week it was looking like we might get re-admitted to the hospital and at the end of the week, we are eating, drinking, walking and able to get the pills down.  This is answered prayer!
Until next time,
Hopeful Believer