"Just the Facts"-- Labs and blood work look good, counts are holding, but feel terrible, extremely weak, declining in the ability to eat and drink, stomach problems decrease the ability to walk.
So it seemed that we were going along just fine, right? But, I have learned not to ask, What's next? We are very happy about the blood counts coming back on a regular basis, holding at good levels. So you wonder why we are feeling so bad. B is on a lot more medicine from this last hiccup with the yellow eyes. That "bad medicine" was super aggressive in causing a problem and we are slowly working our way back from that problem, but the work is arduous. The medicines doubled, they are harder to take than before, and we have new stomach problems that have not been felt before. To top it off we still go to infusion every day for an IV of the other type of medicine to counter act the bad stuff. So it was a long few days since I last posted. Each day B is feeling a little worse. We should be celebrating, but just cannot connect that with how he feels.
You may have noticed that we past the midway point at +day 50! The first 100 days are critical for BMT patients. This is the uber watch and monitor time frame to see how it will take and what the side effects will be. We feel like we got great results, but we are experiencing our fair share of the side effects. Due to the fact that B is feeling so bad, he declined the drug trial. He just cannot imagine taking 1 more pill for any reason. So even though that sounded very promising, we will pass. I am hoping to see an improvement any time now, as he cannot go very long without eating, not at his current weight. So any prayers you could spare, we will gladly accept and very much appreciate. Thank you for your care and faithfulness.
Until next time,
Hopeful Believer
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