"Just the Facts"-- Painful night of sleep once again. Pain meds have been doubled, 2 more bags of blood and 2 bags of platelets made for a busy and wearisome day, but felt good enough to eat!
Of all the things that have been bothering B, and there is quite a list as you can imagine, the biggest issue was the battery in the wall clock was running out. So he has been for the last couple of days always asking me the time. See he could not bring his watch, (a staple on his wrist, usually) and the clock just didn't seem to keep up with the TV at times. He knew something was off, but chemo brain kept him from figuring it all out. We finally had a break through late yesterday and got new batteries for the clock. Whew, glad that little crisis is over. See this little room is his world right now and he likes to have everything just so. I have seen that trait fade a bit in the last week, as things got foggy and weak, but today the correct time was all important. To me that was a huge improvement over the last few days. Even though there was still pain and lots of additives to him, he was eating and sitting up longer, 18 minutes over 10! I will gladly take these little signs of improvement and say thank you.
We have a day 6 round of low dose chemo tonight, again this is just for maintenance to keep both immunity down and anti rejection in force. I am told that he will need more blood and more platelets tonight, so sleep will be something he will long for. Hopefully he will get a sleep aid, something we have forgotten the last week and that may help with everything. By tomorrow B will have been in the hospital for 2 weeks, I can't believe that. Sometimes it seems like just yesterday we were anticipating this phase, and other times it seems he has been here for a year. We will all be glad when he is well enough to return home into our care. That means he will be out of pain, able to sleep and not need blood in the middle of the night. He sure has been a good patient for the staff here. I think they all really like him. And so do I.
Until next time,
Hopeful Believer.
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