Jan 30, Day +3 Painful Sleep

"Just the Facts"'--  Severe muscular-skeletal pain, needed lots of pain drugs, very difficult night, more blood. Another dose of Chemo.

Well we thought that all the much needed sleep was a welcomed respite, however that activity brought on an unexpected new development.  Apparently with the 4 hours of sleep with a few breaks in between, cause some ware on the bones and muscles.  This was further enabled by the nausea drugs, which made B want to lay down all day long. B is not one to just laze around, on the contrary, he is always up and on the go, even when he was sick you would never know it, as he is dressed, and up and moving around.  The doctors mentioned that this was not related to the bone marrow as they hadn't begun those meds yet!  What?  Apparently later in the week B will be given drugs to help stimulate the bone marrow and this will cause some pain in his bones.  Huh.  We didn't know about this.  So a few doses of morphine and then a standing order for Oxycontin later and his is good to go.  Well, we rallied the troops today and brought in a new mattress pad and pillow to help with the bed padding.  Add to that the quilt and throw blanket and yea we succeeded in making the bed much more comfortable.  Hard to think that the bed you have to be in for the next, at least 2 weeks will certainly cause you excruciating pain.  By the end of the day, we felt pretty good.  B was allowed to walk in the halls again, when no one is around to get those bones and muscles moving again.  I think that contributed to his feeling better.

B got 2 more bags of O neg blood this morning.  They start this infusion in the early morning like 3 am. ugh.  It usually ends by 8 or 9.  So he should be filled up with O neg, but believe it or not, he still has some A neg blood in him.  So tomorrow he is going to have what they call a blood exchange procedure.  I mentioned this the other day.  There are some possible issues with this process, so your prayers are coveted.  Also, since today the pain thing was so weird and there is quite a lot of prayer going up for these super cells to take,  maybe they started working all on their own?  B said his pain was in his lower back all the way across.  That sounds just about right where the largest concentration of bone marrow is on a person.  We may never really know what this was about, but I do know there are unusual things happening that all seem to be good things, even if they may hurt a bit.  So we do thank you for your continued prayer.  It has power!
Until next time,
Hopeful Believer