"Just the Facts"-- Had a much better day today, tired but no crazy side effects, little loss of appetite and some weight loss, but OK.
Some have mentioned that they need a better understanding of the rabbit. The is actually a rabbit serum and it is used to help suppress immunity. They give this to help prevent the more serious disease of bone marrow transplant patients, which is called Graph versus Host. GVH is where they new Grafted cells fight with the Host. The side effects of this condition can range anywhere from slight to severe and beyond. The interesting thing is that if you get a slight case of GVH it actually helps the transplant patient do better in the long run. Go figure. The rabbit serum is the drug that gives you the worst flu in your life. Well I can attest that it's reputation is accurate. B had the highest fever all night last night. Higher than any time during the entire year. I can count the number of fevers he has had on one hand, really on only 3 fingers. And the threshold for fever has been 100.5. His fever last night was 102.8 He was on antibiotic drip, anti fever drip, Saline drip, when I left tonight they added a liquid drip to hydrate him in preparation for a 3rd cocktail to be administered tomorrow. This one is short, a 30 minute drip, but wipes out your month in a major way. It works on all the fast turn over cells like in your mouth and stomach. I didn't previously know this but if you get chemo on your skin it will burn you. So all the nurses put on preventative clothing and gloves to protect themselves when changing the bags/tubes. Yikes! So we have 2 more days to get through before day 0, called the new birthday.
Some of you are not aware but B will require 24 hour care for the first 100 days once released. So we have plans to engage our oldest daughter to assist with this care. She attended a Chemo Patient training with me tonight. Let me just say that anything medical is really not her gifting, so the fact that she is willing to do this is amazing and makes us so proud. There will be many new things she will be responsible for that will challenge her, but I know she will do a great job. She has a heart like her dad, and is very generous. It will actually take more that me and our daughter to get B everything he needs. His brother and my mom will also be recruited to assist us in weekly infusion center visits. B will have to go 3 times a week for at least 100 days, then maybe taper off depending. What is that saying about it takes a village? I want to say a special thanks to a certain doggy care giver! She saved the day as well, helping with our tight schedule today! Yea for C.
Prayers were answered all around today, bless each of you.
Until next time,
Hopeful Believer.
No comments:
Post a Comment